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Trial details imported from ClinicalTrials.gov

For full trial details, please see the original record at https://clinicaltrials.gov/study/NCT07082725




Registration number
NCT07082725
Ethics application status
Date submitted
27/06/2025
Date registered
24/07/2025
Date last updated
3/09/2025

Titles & IDs
Public title
A Study to Evaluate the Safety and Efficacy of Oral Nizubaglustat (AZ-3102) in Late-infantile and Juvenile Forms of Niemann-Pick Type C Disease (NPC)
Scientific title
18-month Double-blind, Randomized, Placebo-controlled, Multicenter, Phase 3 Study to Evaluate the Safety and Efficacy of Oral Nizubaglustat (AZ-3102) in Late-infantile and Juvenile Forms of Niemann-Pick Type C Disease and in Late-infantile and Juvenile-onset Forms of GM1 Gangliosidosis or GM2 Gangliosidosis
Secondary ID [1] 0 0
2024-515778-28-00
Secondary ID [2] 0 0
AZA-001-301-NPC
Universal Trial Number (UTN)
Trial acronym
Linked study record

Health condition
Health condition(s) or problem(s) studied:
Niemann-Pick Type C Disease 0 0
Condition category
Condition code
Metabolic and Endocrine 0 0 0 0
Other metabolic disorders

Intervention/exposure
Study type
Interventional
Description of intervention(s) / exposure
Treatment: Drugs - Nizubaglustat
Treatment: Drugs - Placebo

Experimental: Nizubaglustat - Once daily oral dispersible tablets

Placebo comparator: Placebo - Matching placebo


Treatment: Drugs: Nizubaglustat
AZ-3102

Treatment: Drugs: Placebo
Matching placebo

Intervention code [1] 0 0
Treatment: Drugs
Comparator / control treatment
Control group

Outcomes
Primary outcome [1] 0 0
Change from baseline in total Scale for the Assessment and Rating of Ataxia (SARA) score
Timepoint [1] 0 0
Baseline to month 18
Primary outcome [2] 0 0
Change from baseline in functional SARA score
Timepoint [2] 0 0
Baseline to month 18
Secondary outcome [1] 0 0
Change from baseline in SARA score for gait/posture
Timepoint [1] 0 0
Baseline to months 6, 12, and 18
Secondary outcome [2] 0 0
Change from baseline in SARA score for speech
Timepoint [2] 0 0
Baseline to months 6, 12, and 18
Secondary outcome [3] 0 0
Change from baseline in SARA score for kinetics
Timepoint [3] 0 0
Baseline to months 6, 12, and 18
Secondary outcome [4] 0 0
Change from baseline in Vineland Adaptive Behavior Scale (VABS)
Timepoint [4] 0 0
Baseline to months 6, 12, and 18
Secondary outcome [5] 0 0
Change from baseline in Penetration-Aspiration Scale (PAS)
Timepoint [5] 0 0
Baseline to months 6, 12, and 18
Secondary outcome [6] 0 0
Change from baseline in 9-Hole Peg Test (9-HPT-D)
Timepoint [6] 0 0
Baseline to months 6, 12, and 18
Secondary outcome [7] 0 0
Change from baseline in NPC-Clinical Severity Scale (NPC-CSS)
Timepoint [7] 0 0
Baseline to months 6, 12, and 18
Secondary outcome [8] 0 0
Change from baseline in Goal Attainment scale (GAS)
Timepoint [8] 0 0
Baseline to months 6, 12, and 18
Secondary outcome [9] 0 0
Change from baseline in Clinician Global Impression of Change (CGI-C)
Timepoint [9] 0 0
Baseline to months 6, 12, and 18
Secondary outcome [10] 0 0
Change from baseline in Participant/Caregiver Global Impression of Change (PGI-C)
Timepoint [10] 0 0
Baseline to months 6, 12, and 18
Secondary outcome [11] 0 0
Change from baseline in Seizure frequency and duration, as per the seizure diary
Timepoint [11] 0 0
Baseline to months 6, 12, and 18
Secondary outcome [12] 0 0
Time-to-event comparison between nizubaglustat and placebo over the study duration for pre-defined detrimental events of an increase in total SARA score of =2 points
Timepoint [12] 0 0
Baseline to month 18
Secondary outcome [13] 0 0
Time-to-event comparison between nizubaglustat and placebo over the study duration for pre-defined detrimental events of an increase in functional SARA of =1.5 points
Timepoint [13] 0 0
Baseline to month 18
Secondary outcome [14] 0 0
Time-to-event comparison between nizubaglustat and placebo over the study duration for pre-defined detrimental events of a decrease in PAS of =1 point
Timepoint [14] 0 0
Baseline to month 18
Secondary outcome [15] 0 0
Time-to-event comparison between nizubaglustat and placebo over the study duration for pre-defined detrimental events of participants leaving the study due to participant/caregiver perception of disease progression/lack of efficacy
Timepoint [15] 0 0
Baseline to month 18
Secondary outcome [16] 0 0
Maximum observed plasma concentration (Cmax)
Timepoint [16] 0 0
Baseline and months 1,18, and 21
Secondary outcome [17] 0 0
Time to Cmax (Tmax)
Timepoint [17] 0 0
Baseline and months 1,18, and 21
Secondary outcome [18] 0 0
Plasma trough concentration (Ctrough)
Timepoint [18] 0 0
Baseline and month 1
Secondary outcome [19] 0 0
Area under the plasma concentration-time curve from time of dosing (zero) to 24 hours post-dose (AUC0-24) at baseline
Timepoint [19] 0 0
Baseline (Day 1)
Secondary outcome [20] 0 0
Accumulation ratio for Cmax
Timepoint [20] 0 0
Baseline and months 1,18, and 21
Secondary outcome [21] 0 0
Change from baseline in plasma concentration of glucosylceramide (GlcCer) C16:0; C18:0
Timepoint [21] 0 0
Baseline and months 1, 6, 12, and 18

Eligibility
Key inclusion criteria
* Signed informed consent
* Confirmed diagnosis of NPC disease
* Patient is unable or unwilling to take miglustat, or is, in the opinion of the investigator, unsatisfactorily treated with miglustat
* Male and female participants aged 4 years and older at the time of informed consent
* Onset of neurological symptoms from 2 to 15 years
* Disability level at Baseline: Ataxic disturbances with a total SARA score of =3 and =30 at Baseline
* Female of childbearing potential who are sexually active willing to follow the contraceptive guidance
* Male participants with a female partner of childbearing potential willing to follow the contraceptive guidance
Minimum age
4 Years
Maximum age
No limit
Sex
Both males and females
Can healthy volunteers participate?
No
Key exclusion criteria
* A history of medical conditions other than NPC disease that, in the opinion of the Principal Investigator, would confound scientific rigor or the interpretation of results
* Body weight of <10 kg
* The presence of another neurologic disease
* The presence of moderate or severe hepatic impairment
* The presence of moderate or severe renal impairment
* Platelet count of <100x10^9/L
* The dose of any anti-epileptic treatment(s) was not stable (required a change in dose within the previous 3 months) and/or a new anti-epileptic treatment (drug or procedure) was prescribed in the month before Baseline
* Prior use of an investigational drug within the 3 months before Screening; or prior participation in a clinical study involving gene therapy or stem cell transplantation within 2 years prior to Screening
* A positive serum pregnancy test (for women of childbearing potential)
* Current treatment with miglustat, provided the patient has been using the recommended dose for most of the past 12 months AND is, in the opinion of the investigator, satisfactorily treated with miglustat. Any participants receiving miglustat are required to undergo a 1-month washout period before starting study medication

Study design
Purpose of the study
Treatment
Allocation to intervention
Randomised controlled trial
Procedure for enrolling a subject and allocating the treatment (allocation concealment procedures)
Methods used to generate the sequence in which subjects will be randomised (sequence generation)
Masking / blinding
Blinded (masking used)
Who is / are masked / blinded?
The people receiving the treatment/s
The people administering the treatment/s
The people assessing the outcomes
The people analysing the results/data
Intervention assignment
Parallel
Other design features
Phase
Phase 3
Type of endpoint/s
Statistical methods / analysis

Recruitment
Recruitment status
Recruiting
Data analysis
Reason for early stopping/withdrawal
Other reasons
Date of first participant enrolment
Anticipated
Actual
Date of last participant enrolment
Anticipated
Actual
Date of last data collection
Anticipated
Actual
Sample size
Target
Accrual to date
Final
Recruitment in Australia
Recruitment state(s)
SA,VIC
Recruitment hospital [1] 0 0
Women's and Children's Hospital - North Adelaide
Recruitment hospital [2] 0 0
Royal Children's Hospital Melbourne - PIN - Parkville
Recruitment postcode(s) [1] 0 0
5006 - North Adelaide
Recruitment postcode(s) [2] 0 0
3052 - Parkville
Recruitment outside Australia
Country [1] 0 0
United States of America
State/province [1] 0 0
California
Country [2] 0 0
United States of America
State/province [2] 0 0
Virginia
Country [3] 0 0
Argentina
State/province [3] 0 0
Buenos Aires
Country [4] 0 0
Argentina
State/province [4] 0 0
Córdoba Province
Country [5] 0 0
Brazil
State/province [5] 0 0
Rio de Janeiro
Country [6] 0 0
Brazil
State/province [6] 0 0
Rio Grande do Sul
Country [7] 0 0
Brazil
State/province [7] 0 0
Curitiba
Country [8] 0 0
Canada
State/province [8] 0 0
Alberta
Country [9] 0 0
Canada
State/province [9] 0 0
Quebec
Country [10] 0 0
France
State/province [10] 0 0
Bouches-du-Rhône
Country [11] 0 0
India
State/province [11] 0 0
Kerala
Country [12] 0 0
India
State/province [12] 0 0
Maharashtra
Country [13] 0 0
India
State/province [13] 0 0
National Capital Territory of Delhi
Country [14] 0 0
India
State/province [14] 0 0
Rajasthan
Country [15] 0 0
Italy
State/province [15] 0 0
Milan
Country [16] 0 0
Portugal
State/province [16] 0 0
Porto District
Country [17] 0 0
Spain
State/province [17] 0 0
Barcelona
Country [18] 0 0
Spain
State/province [18] 0 0
Madrid
Country [19] 0 0
Switzerland
State/province [19] 0 0
Canton of Bern
Country [20] 0 0
Turkey (Türkiye)
State/province [20] 0 0
Adana
Country [21] 0 0
Turkey (Türkiye)
State/province [21] 0 0
Ankara
Country [22] 0 0
Turkey (Türkiye)
State/province [22] 0 0
Izmir
Country [23] 0 0
United Kingdom
State/province [23] 0 0
London
Country [24] 0 0
United Kingdom
State/province [24] 0 0
Middlesex

Funding & Sponsors
Primary sponsor type
Commercial sector/industry
Name
Azafaros A.G.
Address
Country

Ethics approval
Ethics application status

Summary
Brief summary
Trial website
Trial related presentations / publications
Public notes

Contacts
Principal investigator
Name 0 0
Address 0 0
Country 0 0
Phone 0 0
Fax 0 0
Email 0 0
Contact person for public queries
Name 0 0
Patient Advocacy Representative
Address 0 0
Country 0 0
Phone 0 0
Please reach out by email
Fax 0 0
Email 0 0
Contact person for scientific queries

Data sharing statement
Will individual participant data (IPD) for this trial be available (including data dictionaries)?
No
No/undecided IPD sharing reason/comment


What supporting documents are/will be available?

No Supporting Document Provided


Results publications and other study-related documents

No documents have been uploaded by study researchers.